Duplicated from our CaringBridge site for permanent record here.
December 29 2020, written by Mama
Thomas has been struggling with adequate pain control for 24 hours, at this writing. He was awake crying "ow ow ow!" from 9:00 p.m. to 1:00 a.m. Monday night, then awake for the day by 5:00 a.m. crying the same. I was very concerned he was experiencing bleeding inside and shared my concerns often. Thanks be to God, it appears my fears were unfounded this time.
Over the 24 hours, his abdominal ultrasound showed only small fluid as would be expected after surgery. Drain output changed color, but is not frank blood and the lab tests on it show that it is what would be anticipated. Thomas's hemoglobin and other blood markers have remained within bounds.
So, it is probably just surgical pain and we just keep playing around with the cocktail of medications he receives, with much advice from Pharmacy downstairs.
The team and I were all very grateful during times Thomas would actually be sleeping peacefully and not crying.
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| Sleeping peacefully |
Meanwhile, today marked Thomas's big transition off of continuous dialysis. He continues to make urine and void it on his own! Now we check his blood labs every six hours to see when he will need to go on intermittent dialysis: probably in the morning, but only God knows. Then we will see if his body is strong enough for intermittent dialysis.
I did not choose to leave for a nice fresh walk or anything today because of Thomas's pain, but my self-care did involve leaving during one of his naps to walk downstairs and pick up a nice lunch at Panera . . . although I did hustle back to eat it in the room instead of eating down there.
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