Two years after the end of treatment, and Thomas continues to have No Evidence of neuroblastoma! Clean scans!
(We are still waiting for interpretation of his other organ scans.)
Today we met with the Survivorship Team for the first time. They focus on making the patient as healthy as possible while ameliorating late effects and doing extra monitoring for conditions the patient is now at higher risk for. It is also a top priority of the Survivorship Team to make sure that the patient understands what he went through medically in an age-appropriate way . . . every year as he gets older and older. We even met with a school liaison who will help us draft a 504 plan annually to document Thomas’s educational accommodations.
Thomas will continue to see the Solid Tumor Team once yearly till five years out. He will see the Survivorship team once yearly until his early 20s. That means that for the next three years, he will still visit someone at the Oncology Clinic twice yearly.
Once he is an adult, he will switch to a specialist Oncologist who treats adult survivors of childhood cancer. Since cancer did not even start to be cured until the 1950s, I consider it quite a blessing that we now have specialists who treat adult survivors of childhood cancer!
(The photos are of Thomas reading a book while waiting at Clinic. He usually has a book in his hands!)