Monday, July 20, 2020

Light, Fancy Hair!

Chemotherapy Cycle #1 * Day #19 * Day of Hair Loss #4


Today marked the fourth day of Thomas's hair loss due to chemotherapy and it was the day that Thomas wanted me to buzz his hair very short.

I actually have a very long blog post describing the emotional process our whole family has been going through around hair loss and the physical process just Thomas has been going through, and I will be publishing that when Thomas's hair loss is concluded. There seems to be a gaping absence of this information concerning childhood cancer from a parental perspective in the blogosphere: I can tell you that I've spent several weeks looking for it!

But for now, briefly (by my standards!), I will share that Thomas was so itchy today with hair falling off him continually, coating his clothing, his skin, our clothing, the bath tub, and his sheets that he wanted his hair buzzed off, which we had been ready to do or not do as he requested.

BEFORE PICTURES: From the front, Thomas's hair might look thin and fluffy but almost normal at a glance.


However, a bird's eye view revealed it was very thin with completely bare patches forming. The oncologist had said that some kids lose all their hair on top first while retaining a corona, like a monk with a tonsure, and it looked like Thomas's hair might follow a similar pattern.





Happily watching a cartoon

AFTER PHOTOS: The after photo shows the spots where Thomas still has denser hair and the patches where it is already very thin or bald.


After buzzing his hair, I used a lint roller to remove more hair. My plan is still to be washing his hair each night to help the process along gently.

Watching television
 
Asleep on his tummy

Chris and I have loved watching Thomas take the lead with his feelings and our trying to avoid him having preconceived notions about hair loss. Two nights ago while dressing in his pajamas, Thomas told me out of the blue and triumphantly, "Mama, I'm not sad any more about my hair falling out!"

Tonight I bathed him again to encourage the loose hairs to fall out. He stood in front of the mirror laughingly said, "Mama, look at me! I look so different!"

Cheerfully: "Yes?"

"My hair is lighter. I like lighter hair! I don't like dark hair."

"That's wonderful, honey."

Soon after he was with his dad looking in a mirror and told Daddy, "My light hair makes me look fancy."

"Oh yes, Thomas, I think so, too. I think your new hair looks handsome."

Thomas looked thoughtfully at his reflection and concluded, "I agree."

Thomas's feelings might change when he has truly no hair at all, but he may be completely fine. We are gladly embracing his optimism and sweet spirit moment by moment.

8 comments:

  1. I"m an adult who had chemo and I understand the hair dilemma a bit. I loved my hair but oh, it was so irritating when it started falling out! It felt like I had spiders crawling on me. So I went to short cut, then a really short cut, and then buzzed it off. It was a relief! I'm so glad your son is coping so well with the situation - I think when you the parents are open and honest and supportive, he can just move forward without fear. Keep up the good work! Prayers for your family.

    ReplyDelete
  2. This comment has been removed by the author.

    ReplyDelete
  3. Oh, Thomas, I think your new appearance looks fine and fancy! Your lighter hair makes your eyes look even bigger and browner! And sparkly!

    When the hair comes out while taking this medicine it means that the medicine is working hard! Yay! That is good!

    One thing I think you will not lose--- your sweet spirit!
    your ae

    ReplyDelete
  4. A big high-five to Thomas for recognizing that his lighter hair is OK because it makes him look fancy!

    (A big high-five to his mama for doing such a good job helping him understand all of this.)

    ReplyDelete
  5. Please know that Thomas and you all have prayer warriors in Kentucky! I have been following your blog for a couple of years now and I am so saddened by Thomas's diagnosis. Please know that you all have our prayers and each time one of my children complain about something, I say, 'Offer it up for Thomas.' You all are such an inspiration and example to us. Your family is remembered each day in our daily rosary. God is good all the time. All the time God is good.

    ReplyDelete
  6. Praying that you all find comfort & encouragement in God's loving care and protection!

    ReplyDelete
  7. A variety of baseball caps might be fun and interesting. Perhaps one from each pro team. Folks could take turns sending them in ?

    ReplyDelete
    Replies
    1. Folks are one step ahead of you! Local friends organized to send Thomas hats a couple of weeks ago and we now have so many, we hardly know where to store them all! He's well stocked. :)

      Delete